Quick update on my progress:
Last week the treatment stopped because my renal (kidney) function wasn’t too good. It was failing due to the Amphoteracin B. After 5 straight days of only fluids there was improvement and treatment resumed yesterday. To minimise impact on the renal function the program was altered also. So now I’m taking 3 doses a week, basically one dose every two days.
The actual strand of the fungus was also determined (following testing completed by RPA) - Cryptococcus Gatii (Serotype B). Based on this new information, the treatment timeframe has now been extended to six months (instead of 6 weeks).
My vision is still blurred. I also had my eyes tested at an eye clinic last week and was advised that physically my eyes are fine, the problem is related to the brain/surgery. I met with the neurosurgeon on Monday and she expects we won’t know whether it is permanent or temporary until 6 months after the operation. I can read in spurts.
With all of this in mind, I indicated to the doctor yesterday that I intend to return to somewhat of a normal life, including gradually getting back into work (body and mind permitting), at the beginning of March (around the 12th) .
Tomorrow I will discuss my treatment schedule and options with the hospital to see how I can best balance getting treatment 3 days a week with being able to resume work (without impacting my availability for work too much).
It’s all fun and games I tell yas!